The psychosocial effects of cancer-related lymphedema.
Identifieur interne : 006893 ( Main/Exploration ); précédent : 006892; suivant : 006894The psychosocial effects of cancer-related lymphedema.
Auteurs : Anna Towers [Canada] ; Franco A. Carnevale ; Mary Ellen BakerSource :
- Journal of palliative care [ 0825-8597 ] ; 2008.
Descripteurs français
- KwdFr :
- Activités de la vie quotidienne (psychologie), Activités de loisirs (psychologie), Adaptation psychologique, Attitude du personnel soignant, Attitude envers la santé, Besoins et demandes de services de santé, Conjoints (psychologie), Coût de la maladie, Enquêtes et questionnaires, Femelle, Frustration, Humains, Image du corps, Lymphoedème (), Lymphoedème (psychologie), Lymphoedème (étiologie), Mâle, Programmes nationaux de santé, Qualité de vie (psychologie), Québec, Recherche en méthodologie des soins infirmiers, Recherche qualitative, Soutien social, Tumeurs ().
- MESH :
- psychologie : Activités de la vie quotidienne, Activités de loisirs, Conjoints, Lymphoedème, Qualité de vie.
- étiologie : Lymphoedème.
- Adaptation psychologique, Attitude du personnel soignant, Attitude envers la santé, Besoins et demandes de services de santé, Coût de la maladie, Enquêtes et questionnaires, Femelle, Frustration, Humains, Image du corps, Lymphoedème, Mâle, Programmes nationaux de santé, Québec, Recherche en méthodologie des soins infirmiers, Recherche qualitative, Soutien social, Tumeurs.
English descriptors
- KwdEn :
- Activities of Daily Living (psychology), Adaptation, Psychological, Attitude of Health Personnel, Attitude to Health, Body Image, Cost of Illness, Female, Frustration, Health Services Needs and Demand, Humans, Leisure Activities (psychology), Lymphedema (etiology), Lymphedema (prevention & control), Lymphedema (psychology), Male, National Health Programs, Neoplasms (complications), Nursing Methodology Research, Qualitative Research, Quality of Life (psychology), Quebec, Social Support, Spouses (psychology), Surveys and Questionnaires.
- MESH :
- geographic : Quebec.
- complications : Neoplasms.
- etiology : Lymphedema.
- prevention & control : Lymphedema.
- psychology : Activities of Daily Living, Leisure Activities, Lymphedema, Quality of Life, Spouses.
- Adaptation, Psychological, Attitude of Health Personnel, Attitude to Health, Body Image, Cost of Illness, Female, Frustration, Health Services Needs and Demand, Humans, Male, National Health Programs, Nursing Methodology Research, Qualitative Research, Social Support, Surveys and Questionnaires.
Abstract
Life-long lymphedema is a common complication of cancer therapy. In this Canadian study, we adopted a phenomenological methodology to explore the experience of patients with cancer-related lymphedema, and their spouses. We conducted audio taped semistructured interviews with 11 patients and eight spouses, who were recruited through a university hospital-based lymphedema clinic and through local lymphedema therapists. We developed an analytical framework from the data themselves, and tentative hypotheses and thematic categories that represented shared case features. Participants expressed frustration because of lack of financial support from government and insurance companies, inadequate knowledge and perceived lack of interest on the part of physicians, and lack of awareness in society in general. This study suggests further investigation of the funding of lymphedema treatments, and of the effect of lymphedema on work, intimacy, and leisure activities. Our research findings will inform educational initiatives and cancer rehabilitation programs.
PubMed: 18942563
Affiliations:
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Carnevale</name></author><author><name sortKey="Baker, Mary Ellen" sort="Baker, Mary Ellen" uniqKey="Baker M" first="Mary Ellen" last="Baker">Mary Ellen Baker</name></author></analytic><series><title level="j">Journal of palliative care</title><idno type="ISSN">0825-8597</idno><imprint><date when="2008" type="published">2008</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Activities of Daily Living (psychology)</term><term>Adaptation, Psychological</term><term>Attitude of Health Personnel</term><term>Attitude to Health</term><term>Body Image</term><term>Cost of Illness</term><term>Female</term><term>Frustration</term><term>Health Services Needs and Demand</term><term>Humans</term><term>Leisure Activities (psychology)</term><term>Lymphedema (etiology)</term><term>Lymphedema (prevention & control)</term><term>Lymphedema (psychology)</term><term>Male</term><term>National Health Programs</term><term>Neoplasms (complications)</term><term>Nursing Methodology Research</term><term>Qualitative Research</term><term>Quality of Life (psychology)</term><term>Quebec</term><term>Social Support</term><term>Spouses (psychology)</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Activités de la vie quotidienne (psychologie)</term><term>Activités de loisirs (psychologie)</term><term>Adaptation psychologique</term><term>Attitude du personnel soignant</term><term>Attitude envers la santé</term><term>Besoins et demandes de services de santé</term><term>Conjoints (psychologie)</term><term>Coût de la maladie</term><term>Enquêtes et questionnaires</term><term>Femelle</term><term>Frustration</term><term>Humains</term><term>Image du corps</term><term>Lymphoedème ()</term><term>Lymphoedème (psychologie)</term><term>Lymphoedème (étiologie)</term><term>Mâle</term><term>Programmes nationaux de santé</term><term>Qualité de vie (psychologie)</term><term>Québec</term><term>Recherche en méthodologie des soins infirmiers</term><term>Recherche qualitative</term><term>Soutien social</term><term>Tumeurs ()</term></keywords><keywords scheme="MESH" type="geographic" xml:lang="en"><term>Quebec</term></keywords><keywords scheme="MESH" qualifier="complications" xml:lang="en"><term>Neoplasms</term></keywords><keywords scheme="MESH" qualifier="etiology" xml:lang="en"><term>Lymphedema</term></keywords><keywords scheme="MESH" qualifier="prevention & control" xml:lang="en"><term>Lymphedema</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Activités de la vie quotidienne</term><term>Activités de loisirs</term><term>Conjoints</term><term>Lymphoedème</term><term>Qualité de vie</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Activities of Daily Living</term><term>Leisure Activities</term><term>Lymphedema</term><term>Quality of Life</term><term>Spouses</term></keywords><keywords scheme="MESH" qualifier="étiologie" xml:lang="fr"><term>Lymphoedème</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adaptation, Psychological</term><term>Attitude of Health Personnel</term><term>Attitude to Health</term><term>Body Image</term><term>Cost of Illness</term><term>Female</term><term>Frustration</term><term>Health Services Needs and Demand</term><term>Humans</term><term>Male</term><term>National Health Programs</term><term>Nursing Methodology Research</term><term>Qualitative Research</term><term>Social Support</term><term>Surveys and Questionnaires</term></keywords><keywords scheme="MESH" xml:lang="fr"><term>Adaptation psychologique</term><term>Attitude du personnel soignant</term><term>Attitude envers la santé</term><term>Besoins et demandes de services de santé</term><term>Coût de la maladie</term><term>Enquêtes et questionnaires</term><term>Femelle</term><term>Frustration</term><term>Humains</term><term>Image du corps</term><term>Lymphoedème</term><term>Mâle</term><term>Programmes nationaux de santé</term><term>Québec</term><term>Recherche en méthodologie des soins infirmiers</term><term>Recherche qualitative</term><term>Soutien social</term><term>Tumeurs</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Life-long lymphedema is a common complication of cancer therapy. In this Canadian study, we adopted a phenomenological methodology to explore the experience of patients with cancer-related lymphedema, and their spouses. We conducted audio taped semistructured interviews with 11 patients and eight spouses, who were recruited through a university hospital-based lymphedema clinic and through local lymphedema therapists. We developed an analytical framework from the data themselves, and tentative hypotheses and thematic categories that represented shared case features. Participants expressed frustration because of lack of financial support from government and insurance companies, inadequate knowledge and perceived lack of interest on the part of physicians, and lack of awareness in society in general. This study suggests further investigation of the funding of lymphedema treatments, and of the effect of lymphedema on work, intimacy, and leisure activities. Our research findings will inform educational initiatives and cancer rehabilitation programs.</div></front></TEI><affiliations><list><country><li>Canada</li></country><region><li>Québec</li></region><settlement><li>Montréal</li></settlement><orgName><li>Université McGill</li></orgName></list><tree><noCountry><name sortKey="Baker, Mary Ellen" sort="Baker, Mary Ellen" uniqKey="Baker M" first="Mary Ellen" last="Baker">Mary Ellen Baker</name><name sortKey="Carnevale, Franco A" sort="Carnevale, Franco A" uniqKey="Carnevale F" first="Franco A" last="Carnevale">Franco A. Carnevale</name></noCountry><country name="Canada"><region name="Québec"><name sortKey="Towers, Anna" sort="Towers, Anna" uniqKey="Towers A" first="Anna" last="Towers">Anna Towers</name></region></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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